Rebismart

Hi.. I haven't been posting for a while..

I started my Rebif on 21st Feb 2012. So far I had 3 injections. Its just 8.8 mcg.. after one week its 22 mcg.. then 44 mcg for ever!!

I am already used to it now. I did not even hurt when I injected myself. And not being able to see the needle helps. I had really bad side effects on the first injection. Flu like symptoms, body pain, toes tingling etc. Now I am fine.

The whole unit can be kept in the fridge ( i was shocked, coz I am studying engineering, and I have never heard that you can keep machines working on normal batteries can be refrigerated)

Individual holidays and family giving me stress!!

So you probably read in About Me that I am from Kerala (South of India).

I have some family left back there (I don't talk to my Dad's family..long story) and because we are abroad we go on holiday to meet them. The last time I went was on 2007. (Yeah, it's been a long time).

There is a personal reason that I don't go. My Parents and Brother go there almost every year, but I stay in London. (everyone go by themselves)

It was the first and last time, we ever went as a family, since we moved to England in 2005. and it didn't end well. And I don't want another trip like that.

So my Dad is going again on Tuesday, by himself of course. And before he go, he always create a fight in the family. and he don't talk to anyone when he leaves. I figured out why he does this after observing his trips by himself twice a year for a about 5 years.

If he fight with us, we will not call him or he will call us, so we will not know what he is up to. And I heard from people that he does some things really bad. and my Mum is aware of it as well. So it's not a secret!

My family is just giving me a lot of stress and I don't think they realise how much it is affecting me, especially when I have MS!.

Bupa Home Care Service Welcome Pack

So, today I received the Rebif Kit, it was like Christmas.. lol

The delivery man came with a 10kg box and handed it to me.. then after like 15 mins he came back and said that he forgot to give me the actual medications..

I have put them in the fridge, and still waiting for the nurse to call me.

There's a lot of things in it..

 Serofine needles
3 sharps bin
Screwdriver
10 hour cool bag
Heat pack
MS help guide
MS Rebif passport
RebiSmart Automatic Injection Machine
Shoulder Bag
Spare lithium batteries
Ice packs
Calender/ Injection Tracker
A CD on injection and the treatment

Bupa Delivery Date

So I e-mailed my MS nurse many times, because I didn't hear about my Injections arriving.

She called Bupa and made them speed up the delivery.

Yesterday (6/2/2013), I got a call from Bupa and they said they will deliver the Medications on Friday (8/2/2013)... Yay...

But today (7/2/2013), they called me again and said that they will have to reschedule the delivery to Monday (11/2/2013)... :-(

And also the Community Nurse haven't called me yet to fix a date to have my first injection..

BTW, today was one of my best friend's Bday, so I went to hang out with my friends from Uni.. I went back to Uni after like 4 months and Memories!!....huh..

It was so fun, had lunch at TGIFriday.. And there was a lot of surprises today..hehe