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Thursday, 25 April 2013

Saint Lucy - Patron Saint of Eye Sight

Hello everyone, As you all know, I had Optic Neuritis and I lost complete vision in my left eye on September 2012. I have been praying to Saint Lucy for the healing of my eyes.

I prayed to her everyday and I got my vision back. I am very grateful to her and I want to share the prayer with anyone who have a problem with their eyes.























Saint Lucy,
Whose beautiful name signifies light, 
By the light of Faith which God bestowed upon you,
Increase and preserve his light in my soul,
So that I may avoid evil,
Be zealous in the performance of good works,
And abhor nothing so much as the blindness and the darkness of evil and sin.

Obtain for me, by your intercession with God,
Perfect vision for my bodily eyes
And the grace to use them for God’s greater honor and glory
and the salvation of souls.

St. Lucy, Virgin and martyr,
Hear my prayers and obtain my petitions.
Amen.

Tuesday, 23 April 2013

Out in the Sun

So today I decided to mow the lawn, and it was 19C out.

I asked my Dad and Brother to do it, but they said they cannot be bothered. So I did it

Surprise Surprise, now my hands are numb and my back is tight and my Knee hurts.

So i guess my "core body temperature" raised.

Does this mean I can never workout?..

Oh and by the way, I collected my glasses yesterday, and I love it.. I can see clearly again now.. after living as a half blind for months, I am happy again..

I dedicate everything to Saint Lucy.

Friday, 19 April 2013

Rebif 44mcg Update

Hello...

I am back..

So I have had fourteen 44 mcg injections so far and I have to say that I am pretty happy now.

To my surprise, its not as bad as the 22 mcg dose. But I do have the same side effects, but I just take 2 paracetamols before I go to bed and I wake up feeling normal.

I had my one month blood test on 27th March and the MS Nurse said she will call me if anything is wrong. I still haven't heard from her, so I thinks all is well.

I had my eye tested again on the same day (if u all read the older post about my eye test and the start of optic neuritis, u will understand this better) and my prescription changed and I went back there again last week and ordered glasses. Its coming on 22nd April..YAY.

If any of you have any questions about taking Rebif. Just e-mail me.. :)

Monday, 18 March 2013

Rebif 22mcg update

Hi everyone..

I haven't been posting for a while..

Well have been on 22mcg dose since 6th March and OMG... what a change from 8.8 mcg.. Some days I felt like I was going to die.

That's how dramatic the side effects were.. I usually take the injections after 9.30 pm.. I just had the last of the 22 mcg dose, but the side effects only start at about 4 am next day..

So I take 2 500mg paracetamol before I go to bed.

The main side effects that I can remember.
  • Tingling all over my arm
  • goosebumps
  • shivering like i have hypothermia
  • hallucinations (yh.. its true.. i thought i was getting attacked by snakes almost on all of the injection day)
  • fatigue
  • excruciating eye pain on the day after
  • really bad fatigue
From 20th March (day after tomorrow) I start the 44 mcg.. AAARRRGGGHHH.. I am scared..!!!

I will let you know soon.. OK?..

Bye..

Tuesday, 26 February 2013

Rebismart

Hi.. I haven't been posting for a while..

I started my Rebif on 21st Feb 2012. So far I had 3 injections. Its just 8.8 mcg.. after one week its 22 mcg.. then 44 mcg for ever!!

I am already used to it now. I did not even hurt when I injected myself. And not being able to see the needle helps. I had really bad side effects on the first injection. Flu like symptoms, body pain, toes tingling etc. Now I am fine.

The whole unit can be kept in the fridge ( i was shocked, coz I am studying engineering, and I have never heard that you can keep machines working on normal batteries can be refrigerated)





Sunday, 17 February 2013

Individual holidays and family giving me stress!!

So you probably read in About Me that I am from Kerala (South of India).

I have some family left back there (I don't talk to my Dad's family..long story) and because we are abroad we go on holiday to meet them. The last time I went was on 2007. (Yeah, it's been a long time).

There is a personal reason that I don't go. My Parents and Brother go there almost every year, but I stay in London. (everyone go by themselves)

It was the first and last time, we ever went as a family, since we moved to England in 2005. and it didn't end well. And I don't want another trip like that.

So my Dad is going again on Tuesday, by himself of course. And before he go, he always create a fight in the family. and he don't talk to anyone when he leaves. I figured out why he does this after observing his trips by himself twice a year for a about 5 years.

If he fight with us, we will not call him or he will call us, so we will not know what he is up to. And I heard from people that he does some things really bad. and my Mum is aware of it as well. So it's not a secret!

My family is just giving me a lot of stress and I don't think they realise how much it is affecting me, especially when I have MS!.

Monday, 11 February 2013

Bupa Home Care Service Welcome Pack

So, today I received the Rebif Kit, it was like Christmas.. lol

The delivery man came with a 10kg box and handed it to me.. then after like 15 mins he came back and said that he forgot to give me the actual medications..

I have put them in the fridge, and still waiting for the nurse to call me.

There's a lot of things in it..

 Serofine needles
3 sharps bin
Screwdriver
10 hour cool bag
Heat pack
MS help guide
MS Rebif passport
RebiSmart Automatic Injection Machine
Shoulder Bag
Spare lithium batteries
Ice packs
Calender/ Injection Tracker
A CD on injection and the treatment