tag:blogger.com,1999:blog-72353970598918977132024-03-22T01:30:56.543+00:00Aan's MSHello Everyone,
this is a little blog in which I will tell you about the things that are going on in my life and the things I find interesting.. such as music, films, tv programs, food, and my other hobbies..:).. also my life with MSAan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.comBlogger73125tag:blogger.com,1999:blog-7235397059891897713.post-50248467661745174522014-10-27T11:50:00.001+00:002014-10-27T19:31:20.963+00:00Leg Pain and Imbalance<div dir="ltr" style="text-align: left;" trbidi="on">
<div dir="ltr">
I am in a lot of pain now. I just want to kill myself. My right leg has altered sensation. When I touch it with something cold (even changing clothes) gives me excruciating pain. it hurts like hell. It is also painful when using toilet. ;'(</div>
<div dir="ltr">
And since yesterday my both legs feel weak, like I have no muscles in them. I have so much trouble walking because I lose balance. I walked from Church to home and cried because of the pain and how weird my leg was. Please Lord, Please Please Please Help and Save me. I cannot Cope. :'(s</div>
</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0Woodford, Woodford51.604176 0.0325025tag:blogger.com,1999:blog-7235397059891897713.post-42640548573524126352014-10-21T21:45:00.002+01:002014-10-21T21:45:52.417+01:00Optic Neuritis AGAIN :'(<div dir="ltr" style="text-align: left;" trbidi="on">
Yes. I have Optic Neuritis again. It started yesterday morning while in train. Out of nowhere my right eye got weird. I thought it was the mascara on my eyelashes,<br />
<br />
As the day went by, it cleared.<br />
<br />
Today I woke up and I felt the weirdness again. its on the top part of my right eye as like in January this year. I have been wearing glasses all day, it seems to help ignore the blurness.<br />
<br />
Also I had a flu jab today<br />
<br />
BUT I AM SCARED. I do not know what caused this. I am crying and crying. I will not help with the ON, but I have no choice. I hate MS.<br />
<br />
Please God, Help me. :'(</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-71232754019933076032014-06-06T12:02:00.002+01:002014-06-06T12:02:28.989+01:00Hello.. 1/3 Medical Engineering done<div dir="ltr" style="text-align: left;" trbidi="on">
SO.. I finished a a year of University without much problems.<br />
<br />
Revision and Exam period was hectic, I was under constant stress about the exams and on top of it all, the stress about MS. But, I pulled through. I had my First Driving Practical test yesterday and I failed miserably, but oh well, next time.. :-P.<br />
<br />
I am waiting for my Exam results and I am not expecting much, because I know I tried my hardest.<br />
<br />
<b>My weight-loss</b>... hmm.. During university times, I did not pay attention to it at all. But the day after my last Exam, I have started Calorie counting again. I have lost about 11 kg (~24 lbs) from the highest weight I have been at. I still have a long way to go (~80 lbs... :"( ).<br />
<br />
I have lots and lots of friends now... (even a massive crush.. hehe). Only two of my friends know about my condition and they are very supportive.. especially when I had an ON episode in the middle of Statics Exam... hyuuuoooo that was one of the most scariest thing... but GOD helped.. he helped me a lot..<br />
<br />
Now that I am free... I will try to post more.. <3<br />
<br />
<br /></div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-916094897097995172014-01-15T17:57:00.002+00:002014-01-15T17:57:45.082+00:00Optic Neuritis Episode-- I am scared. :'(<div dir="ltr" style="text-align: left;" trbidi="on">
Hello,<br />
<br />
I am crying while writing this post. I have no idea why I am suffering the way I am.<br />
<br />
In 2012, I had optic neuritis in my left eye and it cleared after 6/7 months and took a year off university. But I do not have 100% vision like I had before the onset.<br />
<br />
Now I have it in my right eye for a few days now and it seem to get worse. I just want to cry and cry and cry.<br />
<br />
I pray everyday and does everything.. But there is no escape for this pain. I just feel like giving up. But I can't.<br />
<br />
I can't quit, not now.<br />
<br />
I feel like I have no one.<br />
<br />
The last time I had problems was a day after I had a fight with my dad.. This eye problem also started a day after I had a fight with him. I just want to go back in time and just be normal again.<br />
<br />
I cannot tell anyone. I am alone, unloved, scared, depressed, and uncertain about my future.<br />
<br />
I do not know what I can change. MS seem to change me. and I do not like it. In fact, I hate it.</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com1tag:blogger.com,1999:blog-7235397059891897713.post-56559124564863567262013-12-03T21:41:00.000+00:002013-12-03T21:41:57.069+00:00Hello..ello...llo...lo..o<div dir="ltr" style="text-align: left;" trbidi="on">
Hello everyone,<br />
I have not been posting anything since 17th September and today its 3rd December.. o_O.<br />
I have been very busy with University and coursework and lab and everything.<br />
I was symptom free till last week. So from July till end of November!!.. yay..<br />
<br />
I started a sore throat two weeks ago and I had a flue jab last week. Then I was under constant pressure for 2 weeks to submit a major coursework and I can feel it taking an effect one me. :'(<br />
<br />
I have<br />
<br />
<ul style="text-align: left;">
<li>24/7 pain/burning pain in left leg, from my hit to toe in patches</li>
<li>achy neck</li>
<li>slight double vision</li>
<li>fatigue</li>
<li>trouble concentrating</li>
</ul>
<div>
<br /></div>
<div>
<u>Rebif Update.</u></div>
<div>
<br /></div>
<div>
I started Rebif on February this year, and guess what my 12th Delivery is in a week.. :-O</div>
<div>
I need to get my nurse to re-prescribe the injections for future.</div>
<div>
No more flu-like symptoms, but I still take paracetamols</div>
<div>
<br /></div>
<div>
I have MS Nurse appointment tomorrow for a regular blood test because I take Rebif.</div>
<div>
<br /></div>
<div>
Remember me in you Prayers.</div>
<div>
<br /></div>
</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-63707204543427819162013-09-17T09:11:00.001+01:002013-12-03T21:34:57.183+00:00Back to Uni<div dir="ltr" style="text-align: left;" trbidi="on">
Hello..<br />
Sorry I haven't been posting for a while. I was just focusing on me. <br />
I have been going to couselling for the past two months and then driving lessons and then calorie counting.<br />
Today I go back to University again after taking the year off because of the relapse and then the diagnosis. <br />
I am very scared because NEW YEAR, NEW STUDENTS, NEW EVERYTHING. <br />
My cousellor have been trying to help me to stop being so paranoid and treating everything as a possible trigger for a relapse. But i am just abt 1/100 of the way there. Its too hard.<br />
Please remember me in your prayers. I hope I can continue going to University and not take leave again. <br />
I will let you all know how it goes. :-)</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-69883050437844418162013-06-17T18:13:00.001+01:002013-06-17T18:13:11.289+01:00Heavy hands<p>Like when I had the first relapse in October 2013.. I am having a relapse where my symptoms are escalating quickly. Within an hour, I cant really lift my left hand up. It feels like a tonne.. </p>
<p>I will not be able to post for a while. Bye. </p>
<p>:-*... :'(.</p>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-61044150505188349422013-06-17T14:53:00.001+01:002013-06-17T21:24:33.271+01:00Its a beautiful day, but I am not well<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="http://lh4.ggpht.com/-7sSfYGkipRY/Ub8UyGI4-ZI/AAAAAAAAAjI/wRO5A9bAaH4/s1600/2013-06-14%25252018.00.17.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="http://lh4.ggpht.com/-7sSfYGkipRY/Ub8UyGI4-ZI/AAAAAAAAAjI/wRO5A9bAaH4/s640/2013-06-14%25252018.00.17.jpg" /> </a> </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="http://lh6.ggpht.com/-5gIIz_WlNoQ/Ub8U1NImAxI/AAAAAAAAAjQ/WHdmvhnLl6E/s1600/2013-06-01%25252010.56.17.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="http://lh6.ggpht.com/-5gIIz_WlNoQ/Ub8U1NImAxI/AAAAAAAAAjQ/WHdmvhnLl6E/s640/2013-06-01%25252010.56.17.jpg" /> </a> </div>
<div class="separator" style="clear: both; text-align: center;">
<a href="http://lh6.ggpht.com/-q72i5JdT2Cw/Ub8U3IT2a0I/AAAAAAAAAjY/kSE1IKs_KD4/s1600/2013-05-31%25252015.49.24.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"> <img border="0" src="http://lh6.ggpht.com/-q72i5JdT2Cw/Ub8U3IT2a0I/AAAAAAAAAjY/kSE1IKs_KD4/s640/2013-05-31%25252015.49.24.jpg" /> </a> </div>
</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-88203398616805260892013-06-16T21:35:00.002+01:002013-06-16T21:35:41.883+01:00It is definitely a relapse<div dir="ltr" style="text-align: left;" trbidi="on">
I feel so horrible..<br />
<br />
everything below neck is numb, I can still feel and stuff, but its weird.<br />
<br />
My fingers are so numb and very bad muscle spasm. I do not know how to get rid of it, I am still new to all this.. :(<br />
<br />
<b>Symptoms:</b><br />
<br />
<ul style="text-align: left;">
<li>Its really hard to type, as I cannot feel the keys sometimes</li>
<li>I drop things constantly</li>
<li>Showering is a task!</li>
<li>No appetite</li>
<li>Forgetting words that are so common</li>
<li>Losing balance sometimes</li>
<li>Under left foot there a stabbing pain when walking</li>
<li>Under right foot it feels round, so a bit off balance now</li>
<li>Going to toilet quite often</li>
<li>FATIGUE</li>
</ul>
<div>
<br /></div>
<div>
I am going to e-mail my MS Nurse and ask her if I should go an see her or go to GP.</div>
<div>
<br /></div>
<div>
The reason I think I have a relapse now is because of a few reasons:</div>
<div>
<ol style="text-align: left;">
<li>On 8th June, we had a party at out house, hosted by my parents for about 40 people. We had caterers and there was a lot of food left over, so we shoved the food in containers and put it in our fridge, so I guess the temperature varied in our fridge. For the next few days, the fridge temp was like 9-13 degree Celsius. All this time, my medication is inside the fridge. So maybe this week I was injecting myself with gone off Rebif.</li>
<li>I had flu with 37.9 degree Celsius on Wednesday and I was ill since Tuesday. So maybe the increase in core temp caused the relapse.</li>
<li>I have been stressed for a few days now, with my parents and brother. So I shouted a lot, Cried a lot, and been generally upset, so that caused the relapse.</li>
<li>Or, its a relapse, face it. Pray to God. Keep Faith.</li>
</ol>
</div>
</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-82551739220742315182013-06-15T12:10:00.000+01:002013-06-15T12:10:25.440+01:00Numb hands, body and mind<div dir="ltr" style="text-align: left;" trbidi="on">
So basically two days ago..(13/06/2013), I woke up with a fever. I checked my temperature and it was 37.9 C or 100.3 F.<br />
<br />
I was feeling so warm and nauseated.<br />
<br />
So basically my body temperature shot up and it was the day after my injection. So injection's flu-like symptoms and actual flu symptoms..<br />
<br />
I was able to manage it all with like 4 paracetamols and the flu went away.<br />
<br />
But since yesterday, my hands started to become numb again, it hurts when I type. By the evening, my whole body is felling that "clothes-sliding-around" feeling again.. oh boy, I HATE IT..<br />
<br />
I woke up today and it is at its worst.. everywhere it got that feeling. down to my toes.<br />
<br />
also under my foot, it feels like there is something there. and it is poking me.<br />
<br />
*SOB*..<br />
<br />
Dear Lord, Please help me..<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-m9Wj_kWcWEM/UbxLcasduhI/AAAAAAAAAiQ/wP-ZyZl4DiY/s1600/315889bff2f239f59f09ac31c999dfa1.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="250" src="http://4.bp.blogspot.com/-m9Wj_kWcWEM/UbxLcasduhI/AAAAAAAAAiQ/wP-ZyZl4DiY/s320/315889bff2f239f59f09ac31c999dfa1.jpg" width="320" /></a></div>
<br /></div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-33361315642905446912013-06-12T09:26:00.001+01:002013-06-12T09:26:50.660+01:00Driving lessons<p>I went for my first ever driving lesson on 10/06/2013. </p>
<p>It was fun, apart from the fact that I freaked out a couple of times and hit the brake suddently and got the car into a kerb.</p>
<p>Nothing majorly horrible happened. after three trials, I drove the car smoothly and parked it, according to the instructor "perfectly parked".. (tap on the shoulder).</p>
<p>There was a constant worry in my head that something bad is going to happen, like a seizure, or a numbness or something.</p>
<p>When I got home, I was so tired and my whole body felt like vibrating from the inside out. Maybe it was all the adraneline from driving for the first time.</p>
<p>Anyways, I cannot wait for the next lesson. </p>
<p>¥</p>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-12481529460998031412013-05-20T10:17:00.001+01:002013-05-20T10:17:33.067+01:00Cheer up.. hehe<div class='separator' style='clear: both; text-align: center;'> <a href='http://lh6.ggpht.com/-gCY_N8wjIy4/UZnqKCKAFuI/AAAAAAAAAhs/3cZXYwJxH1E/s1600/quotes-here-2.jpeg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='http://lh6.ggpht.com/-gCY_N8wjIy4/UZnqKCKAFuI/AAAAAAAAAhs/3cZXYwJxH1E/s640/quotes-here-2.jpeg' /> </a> </div>Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-21178783850247785672013-05-18T09:34:00.001+01:002013-05-18T09:34:38.472+01:00Rebif ® reactions are back<p>So basically I said a few weeks ago that I don't have side effects afters the injections. It was just for a week, unfortunately. All the three injections were from one cartridge of medicine. And it was the same week I had a relapse. So I havr many questions!!. </p>
<p>- Why didnt it work?<br>
- Did the medicine go bad?<br>
- Does the medicine have no effect during a relapse<br>
- Why do I still have sideeffects from the injection? I have taken abt 40 injections so far.</p>
<p>Ok.. thats it.. TOODLES!. :-*</p>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-15605171593520488752013-05-10T20:24:00.001+01:002013-05-10T20:24:00.362+01:00Weightloss<p>So for a few years I have beentrying to lose weight.. didnt really work.. for the past few months i have been  counting my calories.</p>
<p>I can announce that I have lost a total of 9.7 kgs or 21.38 lbs .. I am not going to say from what weight.. :-P but my goal weight is 70kg.. hopefully I will reach that soon.. </p>
<p>It is quite hard now that I have MS.. I am scared to go to gym.. I used to go to gym before I gt diagnosed. </p>
<p>Hopefully I will lose the kilos throught counting calories and some moderate excercises. </p>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-48141746932548232302013-05-06T05:14:00.001+01:002013-05-21T00:59:16.513+01:00Insomnia is a B*tch<p>Its 5:13 am and I am still awake.. i have heart pain and back pain and everything.. </p>
<p>I dont think I will be able to sleep anymore.. </p>
<div class='separator' style='clear: both; text-align: center;'> <a href='http://lh6.ggpht.com/-TC4l5rJ3G6c/UZq40fQOREI/AAAAAAAAAh8/Kdt8agVPJlw/s1600/insomnia.jpeg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='http://lh6.ggpht.com/-TC4l5rJ3G6c/UZq40fQOREI/AAAAAAAAAh8/Kdt8agVPJlw/s640/insomnia.jpeg' /> </a> </div>Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-16339451134347160332013-05-06T03:16:00.001+01:002013-05-06T03:20:00.550+01:00Sleepness nights<p>So.. its 3:12 am.. and I am still not asleep. I have been in my bed simce last night 11 pm.. but I just cannot sleep.. </p>
<p>I am so disturbed.. My arms are acheing, my back is feeling stiff, so ai can only lay on my back and not turn or be in my comfortable position, I feel sick, I see nightmare when I close my eyes.. I can hear my Dad snoring from my parents room.. etc etc.. </p>
<p>I just went downstairs to take two paracetamols and apply some gel to my back and neck.. now I am back in bed. I still cannot sleep. I have to wake up at 8 to go to church as well.. </p>
<p>I am trying to recite the rosary, but my back is causing distraction..</p>
<p>I hate insomnia.. :'(</p>
<div class='separator' style='clear: both; text-align: center;'> <a href='http://lh6.ggpht.com/-5r1GnRzPq38/UYcTPkrQ2oI/AAAAAAAAAg0/nByJMk5q3l8/s1600/IMG-20130101-WA0002.jpg' imageanchor='1' style='margin-left: 1em; margin-right: 1em;'> <img border='0' src='http://lh6.ggpht.com/-5r1GnRzPq38/UYcTPkrQ2oI/AAAAAAAAAg0/nByJMk5q3l8/s640/IMG-20130101-WA0002.jpg' /> </a> </div>Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-65436165389288625512013-05-02T09:10:00.001+01:002013-05-02T09:10:45.831+01:00Hands are numb again.. :'(<p>So basically since last week (after I mowed the lawn), my hands have been slightly numb, but no pins and needles. </p>
<p>Last night I was sleeping in constricted spacr and I woke up today with my hands a lot more numb and it is painful to touch them.</p>
<p>Also the "clothes-sliding-around" is also back.</p>
<p>Why is this happening even if I am regularly having Rebif® injections.</p>
<p>The nurse did say that it is not supposed to stop relapses completely, but to reduce the amount of symptoms that I will face.</p>
<p>Also I go back to Uni again on September (2013). </p>
<p>I am placing my trust in Jesus. Only God can help me.</p>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-12318745885472368812013-04-25T11:27:00.000+01:002013-04-25T11:27:21.922+01:00Saint Lucy - Patron Saint of Eye Sight<div dir="ltr" style="text-align: left;" trbidi="on">
Hello everyone, As you all know, I had Optic Neuritis and I lost complete vision in my left eye on September 2012. I have been praying to Saint Lucy for the healing of my eyes.<br />
<br />
I prayed to her everyday and I got my vision back. I am very grateful to her and I want to share the prayer with anyone who have a problem with their eyes.<br />
<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://stbrigidccd.com/images/saints/lucy.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="400" src="http://stbrigidccd.com/images/saints/lucy.jpg" width="296" /></a></div>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;">Saint Lucy,</span><br />
<span style="background-color: white; color: purple;">Whose beautiful name signifies light, </span><br />
<span style="background-color: white; color: purple;">By the light of Faith which God bestowed upon you,</span><br />
<span style="background-color: white; color: purple;">Increase and preserve his light in my soul,</span><br />
<span style="background-color: white; color: purple;">So that I may avoid evil,</span><br />
<span style="background-color: white; color: purple;">Be zealous in the performance of good works,</span><br />
<span style="background-color: white; color: purple;">And abhor nothing so much as the blindness and the darkness of evil and sin.</span><br />
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;">Obtain for me, by your intercession with God,</span><br />
<span style="background-color: white; color: purple;">Perfect vision for my bodily eyes</span><br />
<span style="background-color: white; color: purple;">And the grace to use them for God’s greater honor and glory</span><br />
<span style="background-color: white; color: purple;">and the salvation of souls.</span><br />
<span style="background-color: white; color: purple;"><br /></span>
<span style="background-color: white; color: purple;">St. Lucy, Virgin and martyr,</span><br />
<span style="background-color: white; color: purple;">Hear my prayers and obtain my petitions.</span><br />
<span style="background-color: white; color: purple;">Amen.</span><br />
</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-25267184555511500232013-04-23T17:00:00.000+01:002013-04-25T11:19:13.155+01:00Out in the Sun<div dir="ltr" style="text-align: left;" trbidi="on">
So today I decided to mow the lawn, and it was 19C out.<br />
<br />
I asked my Dad and Brother to do it, but they said they cannot be bothered. So I did it<br />
<br />
Surprise Surprise, now my hands are numb and my back is tight and my Knee hurts.<br />
<br />
So i guess my "core body temperature" raised.<br />
<br />
Does this mean I can never workout?..<br />
<br />
Oh and by the way, I collected my glasses yesterday, and I love it.. I can see clearly again now.. after living as a half blind for months, I am happy again..<br />
<br />
I dedicate everything to Saint Lucy.</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-37608118648701251112013-04-19T23:04:00.000+01:002013-04-25T11:14:33.530+01:00Rebif 44mcg Update<div dir="ltr" style="text-align: left;" trbidi="on">
Hello...<br />
<br />
I am back..<br />
<br />
So I have had fourteen 44 mcg injections so far and I have to say that I am pretty happy now.<br />
<br />
To my surprise, its not as bad as the 22 mcg dose. But I do have the same side effects, but I just take 2 paracetamols before I go to bed and I wake up feeling normal.<br />
<br />
I had my one month blood test on 27th March and the MS Nurse said she will call me if anything is wrong. I still haven't heard from her, so I thinks all is well.<br />
<br />
I had my eye tested again on the same day (if u all read the older post about my eye test and the start of optic neuritis, u will understand this better) and my prescription changed and I went back there again last week and ordered glasses. Its coming on 22nd April..YAY.<br />
<br />
If any of you have any questions about taking Rebif. Just e-mail me.. :)</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-78819191394240293372013-03-18T22:00:00.000+00:002013-04-25T11:03:49.378+01:00Rebif 22mcg update<div dir="ltr" style="text-align: left;" trbidi="on">
Hi everyone..<br />
<br />
I haven't been posting for a while..<br />
<br />
Well have been on 22mcg dose since 6th March and OMG... what a change from 8.8 mcg.. Some days I felt like I was going to die.<br />
<br />
That's how dramatic the side effects were.. I usually take the injections after 9.30 pm.. I just had the last of the 22 mcg dose, but the side effects only start at about 4 am next day..<br />
<br />
So I take 2 500mg paracetamol before I go to bed.<br />
<br />
The main side effects that I can remember.<br />
<div style="text-align: left;">
</div>
<ul style="text-align: left;">
<li><span style="color: #cc0000;">Tingling all over my arm</span></li>
<li><span style="color: #cc0000;">goosebumps</span></li>
<li><span style="color: #cc0000;">shivering like i have hypothermia</span></li>
<li><span style="color: #cc0000;">hallucinations (yh.. its true.. i thought i was getting attacked by snakes almost on all of the injection day)</span></li>
<li><span style="color: #cc0000;">fatigue</span></li>
<li><span style="color: #cc0000;">excruciating eye pain on the day after</span></li>
<li><span style="color: #cc0000;">really bad fatigue</span></li>
</ul>
<div>
<span style="color: purple;">From 20th March (day after tomorrow) I start the 44 mcg.. AAARRRGGGHHH.. I am scared..!!!</span></div>
<div>
<span style="color: purple;"><br /></span></div>
<div>
<span style="color: purple;">I will let you know soon.. OK?..</span></div>
<div>
<span style="color: purple;"><br /></span></div>
<div>
<span style="color: purple;">Bye..</span></div>
</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-63868976532884117312013-02-26T13:26:00.001+00:002013-02-26T13:26:50.593+00:00Rebismart<div dir="ltr" style="text-align: left;" trbidi="on">
Hi.. I haven't been posting for a while..<br />
<br />
I started my Rebif on 21st Feb 2012. So far I had 3 injections. Its just 8.8 mcg.. after one week its 22 mcg.. then 44 mcg for ever!!<br />
<br />
I am already used to it now. I did not even hurt when I injected myself. And not being able to see the needle helps. I had really bad side effects on the first injection. Flu like symptoms, body pain, toes tingling etc. Now I am fine.<br />
<br />
The whole unit can be kept in the fridge ( i was shocked, coz I am studying engineering, and I have never heard that you can keep machines working on normal batteries can be refrigerated)<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-lRQZ30ELj70/USy2tBRGx6I/AAAAAAAAAfs/-oNlsuFGAUQ/s1600/2013-02-23+17.52.16.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-lRQZ30ELj70/USy2tBRGx6I/AAAAAAAAAfs/-oNlsuFGAUQ/s320/2013-02-23+17.52.16.jpg" width="240" /></a></div>
<a href="http://1.bp.blogspot.com/-0PhSYEt7i48/USy2vK0E1-I/AAAAAAAAAf0/pHZkdUcQQ6o/s1600/2013-02-23+17.54.43.jpg" imageanchor="1" style="clear: left; display: inline !important; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="http://1.bp.blogspot.com/-0PhSYEt7i48/USy2vK0E1-I/AAAAAAAAAf0/pHZkdUcQQ6o/s320/2013-02-23+17.54.43.jpg" width="240" /></a><br />
<br />
<div class="separator" style="clear: both; text-align: center;">
</div>
<a href="http://1.bp.blogspot.com/-w44iR6x21tw/USy2xqt0STI/AAAAAAAAAgM/9yfZlVNR9Nc/s1600/2013-02-23+17.55.21.jpg" imageanchor="1" style="clear: left; display: inline !important; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="http://1.bp.blogspot.com/-w44iR6x21tw/USy2xqt0STI/AAAAAAAAAgM/9yfZlVNR9Nc/s320/2013-02-23+17.55.21.jpg" width="240" /></a><a href="http://2.bp.blogspot.com/-zk1_6T5hYE8/USy2yCbs35I/AAAAAAAAAgQ/1ub_1QQGNjk/s1600/2013-02-23+17.55.52.jpg" imageanchor="1" style="clear: left; display: inline !important; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="http://2.bp.blogspot.com/-zk1_6T5hYE8/USy2yCbs35I/AAAAAAAAAgQ/1ub_1QQGNjk/s320/2013-02-23+17.55.52.jpg" width="240" /></a><br />
<br /></div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0tag:blogger.com,1999:blog-7235397059891897713.post-77185174710425381952013-02-17T12:58:00.002+00:002013-02-17T12:58:40.105+00:00Individual holidays and family giving me stress!!<div dir="ltr" style="text-align: left;" trbidi="on">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOBZbPxsya0AfSoB0JJ6WJR_ZgMwi3xsJdip0nJkU1dFHz-q875hYzHNFX-2KUvAh8vRXQ_8S7q02fu48fCVmAirhQrdg1tFPUGlb6IvEKeO6b942vRKGzQcm_tEej08aOd1f1Al2X2_xz/s1600/Kerala_Map.gif" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOBZbPxsya0AfSoB0JJ6WJR_ZgMwi3xsJdip0nJkU1dFHz-q875hYzHNFX-2KUvAh8vRXQ_8S7q02fu48fCVmAirhQrdg1tFPUGlb6IvEKeO6b942vRKGzQcm_tEej08aOd1f1Al2X2_xz/s400/Kerala_Map.gif" width="275" /></a>So you probably read in About Me that I am from Kerala (South of India).<br />
<br />
I have some family left back there (I don't talk to my Dad's family..long story) and because we are abroad we go on holiday to meet them. The last time I went was on 2007. (Yeah, it's been a long time).<br />
<br />
There is a personal reason that I don't go. My Parents and Brother go there almost every year, but I stay in London. (everyone go by themselves)<br />
<br />
It was the first and last time, we ever went as a family, since we moved to England in 2005. and it didn't end well. And I don't want another trip like that.<br />
<br />
So my Dad is going again on Tuesday, by himself of course. And before he go, he always create a fight in the family. and he don't talk to anyone when he leaves. I figured out why he does this after observing his trips by himself twice a year for a about 5 years.<br />
<br />
If he fight with us, we will not call him or he will call us, so we will not know what he is up to. And I heard from people that he does some things really bad. and my Mum is aware of it as well. So it's not a secret!<br />
<br />
My family is just giving me a lot of stress and I don't think they realise how much it is affecting me, especially when I have MS!.</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com1tag:blogger.com,1999:blog-7235397059891897713.post-86680652338333535152013-02-11T17:25:00.000+00:002013-02-12T17:26:32.426+00:00Bupa Home Care Service Welcome Pack<div dir="ltr" style="text-align: left;" trbidi="on">
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-SJqCUeyw0C0/URp5v8Bk5sI/AAAAAAAAAdU/s2KI7JDUpkg/s1600/2013-02-09+11.59.16.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-SJqCUeyw0C0/URp5v8Bk5sI/AAAAAAAAAdU/s2KI7JDUpkg/s320/2013-02-09+11.59.16.jpg" width="240" /></a></div>
<div class="separator" style="clear: both; text-align: center;">
</div>
So, today I received the Rebif Kit, it was like Christmas.. lol<br />
<br />
The delivery man came with a 10kg box and handed it to me.. then after like 15 mins he came back and said that he forgot to give me the actual medications..<br />
<br />
I have put them in the fridge, and still waiting for the nurse to call me.<br />
<br />
There's a lot of things in it..<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://4.bp.blogspot.com/-lDbqhyMGrPA/URp50kiN_QI/AAAAAAAAAd8/4-nyjx2z-ik/s1600/2013-02-11+16.22.37.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240" src="http://4.bp.blogspot.com/-lDbqhyMGrPA/URp50kiN_QI/AAAAAAAAAd8/4-nyjx2z-ik/s320/2013-02-11+16.22.37.jpg" width="320" /></a></div>
Serofine needles<br />
3 sharps bin<br />
Screwdriver<br />
10 hour cool bag<br />
Heat pack<br />
MS help guide<br />
MS Rebif passport<br />
RebiSmart Automatic Injection Machine<br />
Shoulder Bag<br />
Spare lithium batteries<br />
Ice packs<br />
Calender/ Injection Tracker<br />
A CD on injection and the treatment<br />
<br />
<div class="separator" style="clear: both; text-align: center;">
<a href="http://1.bp.blogspot.com/-dlod2glgM0E/URp51hwnROI/AAAAAAAAAeE/9wYpeeM_vBQ/s1600/2013-02-11+16.25.02.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240" src="http://1.bp.blogspot.com/-dlod2glgM0E/URp51hwnROI/AAAAAAAAAeE/9wYpeeM_vBQ/s320/2013-02-11+16.25.02.jpg" width="320" /></a></div>
<br /></div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com2tag:blogger.com,1999:blog-7235397059891897713.post-22420456632185052882013-02-07T21:00:00.000+00:002013-02-09T17:24:37.600+00:00Bupa Delivery Date<div dir="ltr" style="text-align: left;" trbidi="on">
So I e-mailed my MS nurse many times, because I didn't hear about my Injections arriving.<br />
<br />
She called Bupa and made them speed up the delivery.<br />
<br />
Yesterday (6/2/2013), I got a call from Bupa and they said they will deliver the Medications on Friday (8/2/2013)... Yay...<br />
<br />
But today (7/2/2013), they called me again and said that they will have to reschedule the delivery to Monday (11/2/2013)... :-(<br />
<br />
And also the Community Nurse haven't called me yet to fix a date to have my first injection..<br />
<br />
BTW, today was one of my best friend's Bday, so I went to hang out with my friends from Uni.. I went back to Uni after like 4 months and Memories!!....huh..<br />
<br />
It was so fun, had lunch at TGIFriday.. And there was a lot of surprises today..hehe</div>
Aan Antonyhttp://www.blogger.com/profile/17616776831909455380noreply@blogger.com0