YAY.. My Blog link on mattsms.com

Hi all..


Basically, the main reason I decided to start a MS blog is because of the videos and blog of Matt (www.mattsms.com). I was inspired to write again on a blog that I started a few years back to display my sketches, but now its to share my MS experiences.

Today I saw in his website that my website is displayed under his "Links".. I am so Happy.

Nausea from ketone (alright now)

So I started taking the ketone yesterday and it was one of the worst days in my life (but nothing will beat the MS relapses)..

I was so nauseated. I couldn't even lift my head up. I was in my bed most of the day, but I pulled through. Today I took them again and about 3 Kalms tablets (so stressed due to family problems). I was alright, but I slept for about 2 hours like I was dead, and apparently my mum and dad tried to wake me up and I didn't respond.

I think I will continue taking the ketone. I guess the nausea was due to my body not being used to them.

Raspberry Ketones..

Today I started to take Raspberry ketones to lose some weight. I do not know if it works or if it is safe for me, as I have MS. I took one each before breakfast and lunch today. I feel like something is stuck in my throat and it is not a nice feeling. I feel so sick, and I am so thirty. I will tell you how it goes. OK?

Snow.

My right pinky has lost sensation... again..

I posted that my right hand is really painful.

Basically since yesterday, my right pinky finger has lost the sensation completely (If run super cold water or super hot water, nothing). But it hurts when I touch the finger. That's weird right? Also it's curled slightly.

Yesterday I took the rosary out of my neck and left it in my room before taking a shower (I have never taken the rosary out, except for MRI and EEG). Then I forgot to put it back.

I woke up at like 4.46 am and my body was feeling so weird, I thought I was going to die.

Then I fell asleep again and woke up and my right side of abdomen feels like what I had on 13/10/2012.. "clothing sliding around".. I am wearing the rosary now and I hope God helps me.

Also I read that the pinky and half of the ring finger can lose its sensation when a nerve is compressed in the elbow (Ulnar nerve) so, I was trying the sleep without bending my arm, which is really hard to do. Even if I go to the Doctor, they will just say it's MS..MS..MS..MS..

Like people with MS cannot have any other problems.

Anyways I called the Surgery and I have an appointment with my GP at 9.20 am tomorrow.

Tremors ... :'(

My eyes are better... yay..

Well not completely, but back to what it was after my first ON episode. but I am happy..

But tremors are back.. :(

If you have read my post on "Getting Worse, Last day of Uni for me" you will remember that I couldn't take lecture notes of anything.. So I am back to that now!!.. My right hand has been in pain for more than a week now. It just hurts a lot.

Since yesterday, my fingers have started to curl up again and I have no sensation there whatsoever. No cold, no hot, nothing. It is very hard to do anything.

I have stopped painting again. If the tremor continues, I will have to stop cooking soon too. So, I am gonna call the GP on Monday and get an appointment. Hopefully he will give me some beta-blockers or something. Also I have to start seeing the dietitian again.

BTW, its been snowing since Thursday. Not a lot, just a few centimeters. I will post some pics soon... :)

Another Quarrel (Family)

I love gift boxes, especially the ones that they come in with bows and glitter. I always keep them and keep them safe. Yesterday, I took about 15 of them and went to my brother and showed it to him, then left it on his table top.

Today when I came back from the MS nurse appointment, my mum told me that my dad binned all of my gift boxes and the waste collection was in the morning.

I busted out and I was so angry at them for doing it and I was stressed and cried a lot.

If you have MS, you will probably understand about this uncontrollable emotions. It was just not like me. My dad got so angry and said a lot of hurtful things.

After a few hours, my mum came to me and whispered to me, "don't worry, I took them out of the bin and they are safe".

OMG, I was even more angry at that, she could have said atleast a word before I started screaming.

Then I realised, my dad ordered in online about 100 gift boxes and they cost about £50 (See below).

Now, my dad is not talking to me either.

So thanks my "supportive" family for giving me even more stress.

 

MS nurse appointment

The appointment was due at 9 am, but I got there after 9.10 am, my parents took so long to get ready.

Well I got there and the Nurse said that it is in fact a relapse, but not severe, so I don't need to have another course of steroids, coz I had them just 3 months back, and if my symptoms get worse, I will be given steroids.

She said, I will have to wait a few more weeks for DMDs to get delivered.

Something under foot

I went to eye unit to show my eyes and the doctor told me it could be a Optic Neuritis relapse. So, I have to contact my neuro ASAP...

I went for grocery shopping with my parents and I came home. Then I started feeling something under my left foot sole.. It is very painful and I cannot walk.

Time to bring the crutches out..:(     

The eye doctor also said that I might have to have another course of steroids...:(

Waiting for DMDs

Since I was diagnosed in October, I was told by my neuro that I need to start my DMDs ASAP..

I had to start seeing an MS Nurse, and I only got to see her in thr first week of December. She said it will take a few weeks.

I called her a day before Christmas and she said it can take at least 6 more weeks.

I feel like my steroid injections are wearing off. Coz my eyes are weird again amd my left side is numb and have slight pins amd needles

So, its been 10-11 weeks since I have been waiting and I am scared about having another relapse..

Please pray for me..

Symptoms I had so far.. 7 Jan 2013

Here's a List of Symptoms I had so far since March 2012

March 2012

• Right leg weakness (near paralysed)

June 2012 

• Migraine
• Seizure

August 2012

• Optic Neuritis (Lost 100% vision in Left eye for about 3 months within a week)

September 2012

• Altered skin sensation - cold when hot and hot when cold

October 2012

• Pins and needles
• Numbness 
• Constipation (for a week)
• Urinary retention
• Tongue numbness and taste disturbance (metallic and blood taste all the time)
• Numb teeth
• Numb lips
• Lack of appetite
• Under feet feels like round, so no balance
• Hard to walk
• Dry skin feeling in abdomen - clothes feels like they are sliding around
• No pain even when poked (I got burned with hot oil and didn't realise it)
• Tight back (it was the worst one) 
• Couldn't get up from bed - feeling sooo heavy!
• No hand eye coordination (I couldn't touch my nose with eyes closed or tell where I am touched without seeing)
• MS hug - up till heart line
• Behavioural changes - temper, happy, angry, stress, anxiety
• Memory Loss
• Lack of concentration

January 2013

• Double Vision
• Blurred Vision

Pain is back

Yesterday night my back was feeling a bit tight.. today it was gone.. but my altered sensation thing is back...

Whenever something cold touch the left side of my body, It is very painful like it is burning. So it was hard to shower as the shower curtain is so cold and it kept on touching me... :'(

My eyes are so bad... I cannot see clearly now, I would say my eye without Optic Neuritis is better than the one affected...:(.. It got definite double vision in my right eye

I am thinking of going to the Eye Casualty tomorrow and I called my MS nurse and she told me she want to see me on Wednesday (09/01/2013)

Eye co-ordination

My eyes have a lot of trouble focusing on anything and have double vision.. I have discovered that my eyes are not coordinating together...:(...

I feel like its going to be another relapse and I have no news about when I might be getting my Rebif..

Eye Update

My eyes are still bad.. My left eye just got near recovered from the first Optic Neuritis attack.. Now it could be back again.

My right eye was already short-sighted, now its even worse.. I have double vision and cannot see properly... It is so hard to focus on anything..

Eyes are troubling me again

Today I woke up with a heavy feeling in both my eyes.. this was how my first symptoms of optic neuritis was... I hope nothing will be wrong...:)

Happy new Year

I had a party last night... I got home at about 3 am.. it was a New Year party.. So I got to watch the London Fireworks from their house... It was A-M-A-Z-I-N-G...

London did goooood