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Monday, 6 May 2013

Insomnia is a B*tch

Its 5:13 am and I am still awake.. i have heart pain and back pain and everything..

I dont think I will be able to sleep anymore..

Sleepness nights

So.. its 3:12 am.. and I am still not asleep. I have been in my bed simce last night 11 pm.. but I just cannot sleep..

I am so disturbed.. My arms are acheing, my back is feeling stiff, so ai can only lay on my back and not turn or be in my comfortable position, I feel sick, I see nightmare when I close my eyes.. I can hear my Dad snoring from my parents room.. etc etc..

I just went downstairs to take two paracetamols and apply some gel to my back and neck.. now I am back in bed. I still cannot sleep. I have to wake up at 8 to go to church as well..

I am trying to recite the rosary, but my back is causing distraction..

I hate insomnia.. :'(

Thursday, 2 May 2013

Hands are numb again.. :'(

So basically since last week (after I mowed the lawn), my hands have been slightly numb, but no pins and needles.

Last night I was sleeping in constricted spacr and I woke up today with my hands a lot more numb and it is painful to touch them.

Also the "clothes-sliding-around" is also back.

Why is this happening even if I am regularly having Rebif® injections.

The nurse did say that it is not supposed to stop relapses completely, but to reduce the amount of symptoms that I will face.

Also I go back to Uni again on September (2013).

I am placing my trust in Jesus. Only God can help me.

Thursday, 25 April 2013

Saint Lucy - Patron Saint of Eye Sight

Hello everyone, As you all know, I had Optic Neuritis and I lost complete vision in my left eye on September 2012. I have been praying to Saint Lucy for the healing of my eyes.

I prayed to her everyday and I got my vision back. I am very grateful to her and I want to share the prayer with anyone who have a problem with their eyes.























Saint Lucy,
Whose beautiful name signifies light, 
By the light of Faith which God bestowed upon you,
Increase and preserve his light in my soul,
So that I may avoid evil,
Be zealous in the performance of good works,
And abhor nothing so much as the blindness and the darkness of evil and sin.

Obtain for me, by your intercession with God,
Perfect vision for my bodily eyes
And the grace to use them for God’s greater honor and glory
and the salvation of souls.

St. Lucy, Virgin and martyr,
Hear my prayers and obtain my petitions.
Amen.

Tuesday, 23 April 2013

Out in the Sun

So today I decided to mow the lawn, and it was 19C out.

I asked my Dad and Brother to do it, but they said they cannot be bothered. So I did it

Surprise Surprise, now my hands are numb and my back is tight and my Knee hurts.

So i guess my "core body temperature" raised.

Does this mean I can never workout?..

Oh and by the way, I collected my glasses yesterday, and I love it.. I can see clearly again now.. after living as a half blind for months, I am happy again..

I dedicate everything to Saint Lucy.

Friday, 19 April 2013

Rebif 44mcg Update

Hello...

I am back..

So I have had fourteen 44 mcg injections so far and I have to say that I am pretty happy now.

To my surprise, its not as bad as the 22 mcg dose. But I do have the same side effects, but I just take 2 paracetamols before I go to bed and I wake up feeling normal.

I had my one month blood test on 27th March and the MS Nurse said she will call me if anything is wrong. I still haven't heard from her, so I thinks all is well.

I had my eye tested again on the same day (if u all read the older post about my eye test and the start of optic neuritis, u will understand this better) and my prescription changed and I went back there again last week and ordered glasses. Its coming on 22nd April..YAY.

If any of you have any questions about taking Rebif. Just e-mail me.. :)

Monday, 18 March 2013

Rebif 22mcg update

Hi everyone..

I haven't been posting for a while..

Well have been on 22mcg dose since 6th March and OMG... what a change from 8.8 mcg.. Some days I felt like I was going to die.

That's how dramatic the side effects were.. I usually take the injections after 9.30 pm.. I just had the last of the 22 mcg dose, but the side effects only start at about 4 am next day..

So I take 2 500mg paracetamol before I go to bed.

The main side effects that I can remember.
  • Tingling all over my arm
  • goosebumps
  • shivering like i have hypothermia
  • hallucinations (yh.. its true.. i thought i was getting attacked by snakes almost on all of the injection day)
  • fatigue
  • excruciating eye pain on the day after
  • really bad fatigue
From 20th March (day after tomorrow) I start the 44 mcg.. AAARRRGGGHHH.. I am scared..!!!

I will let you know soon.. OK?..

Bye..