Goodbye uni.. for now..

Today I went to Uni to submit my deferral application... I will admit, I was pretty sad, coz I was doing my dream course.. Now I will have to pause it for at least a year...:(...

Getting Better.. :-)

I thought I will give an update on my condition now after 3g of methyprednisolone is in my body...

Well, I can pretty much walk normally now.. I can use my hands (still about 50% numb).. still cannot taste... left side of body is a bit numb.. I am going to uni to apply for deferal...

Physio appointment

I had physio appointment today... I had to wait for like 3 hours..

I got crutches now.. that's all for today... so tired...

Steroid day 3

Day 3...

I am actually gonna miss coming to ambulatory unit everyday... the room got a nice view and the nurses are so kind to me..

It was quite boring today.. I didn't get to sit at the conservatory...:(

I saw another girl across me, who also have MS, and she is like 24.. she doesn't know that I have MS..

My neurologist came to visit me after 6 pm. He talked to me for like half an hour and was surprised to see that I was still smiling... hehe...

There are only a few sad things in my life atm...

I have MS
I cannot go to University now
I cannot paint now
I cannot write now
I cannot cook now
I cannot taste anything
I cannot walk now

I have physiotherapist appointment tomorrow... I hope they can help me with my mobility issues...:)..

Steroid day 2

Day 2....

Started the IV steroid at 3 pm again and finished after 6 pm... it didn't feel soo long, the nurses gave me a recliner chair, so I was soo comfortable... hehe.. I was just listening to music.. my symptoms are still the same... no change...

Can't hold anything with my hand
Can't go to toilet
Can't walk properly
Can't eat
Can't think
Can't text
Can't cook

etc..

I love my nurse...:).. she is soooo funny

MRI and Results.. Oh No!

MRI...

Today at 8 am I had Emergency MRI... It took about 50 mins.. but I didn't notice it.. as I was praying the whole time... I was reciting rosary (I am a Catholic)...

It was sooo hard to lay down in the bed, coz my back was feeling sooooo tight and painful...

I went to ambulatory unit straight after the MRI to get my results, but the nurse there said I should go home as the doctor is not in yet and they will call me when they analyse my MRI.. So I was pretty sure that there isn't anything Major...:)

Results...:(

2.00 pm: I was chilling out at home thinking that my MRI is normal and there is nothing to worry about.. but literally after a few seconds the phone rang and the nurse is a friend of my aunt and a nurse at the ambulatory department, she told me to get to the hospital ASAP.

2.30 pm: At hospital waiting for the doctor, then two doctors and two nurses came to call me, my Mum, Dad and my Aunt was there too.. (My mum and aunt are both nurses). I was taken to a room with the doctors and my family. Then the doctors asked me do I have any idea what I might have.. I said MS.. coz I already knew about the disease and I suspected it when I had the leg trouble back in March...

2.45 pm: Doctors told me that my MRI was abnormal. They found lesions in my brain and spine.. Then I have Multiple Sclerosis.... Finally I can put a name to my weird symptoms.. and they decided to start the steroids... ASAP

3.00 pm: Starting Methylprednisolone IV 1g for the next three days.... and three hours each

after 6.00 pm: Finished the course for the day... had a lot of trouble walking, but my mum supported me to walk.

Given a clue..o_O

I went to A&E again today.. so fourth time this week to hospital.

I was there from the morning and got checked by about three doctors.

Then told me to wait for a few hours.

Then a nurse came and told me to sit in a wheelchair and I was taken to ambulatory unit, there I saw a senior doctor and he checked my balance and co-ordination, then checked eyes and everything else.

He told me what he and the other doctors suspect I have.... Multiple Sclerosis...

I wish they hadn't told me now.