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Tuesday, 3 December 2013

Hello..ello...llo...lo..o

Hello everyone,
I have not been posting anything since 17th September and today its 3rd December.. o_O.
I have been very busy with University and coursework and lab and everything.
I was symptom free till last week. So from July till end of November!!.. yay..

I started a sore throat two weeks ago and I had a flue jab last week. Then I was under constant pressure for 2 weeks to submit a major coursework and I can feel it taking an effect one me. :'(

I have

  • 24/7 pain/burning pain in left leg, from my hit to toe in patches
  • achy neck
  • slight double vision
  • fatigue
  • trouble concentrating

Rebif Update.

I started Rebif on February this year, and guess what my 12th Delivery is in a week.. :-O
I need to get my nurse to re-prescribe the injections for future.
No more flu-like symptoms, but I still take paracetamols

I have MS Nurse appointment tomorrow for a regular blood test because I take Rebif.

Remember me in you Prayers.

Tuesday, 17 September 2013

Back to Uni

Hello..
Sorry I haven't been posting for a while. I was just focusing on me.
I have been going to couselling for the past two months and then driving lessons and then calorie counting.
Today I go back to University again after taking the year off because of the relapse and then the diagnosis.
I am very scared because NEW YEAR, NEW STUDENTS, NEW EVERYTHING.
My cousellor have been trying to help me to stop being so paranoid and treating everything as a possible trigger for a relapse. But i am just abt 1/100 of the way there. Its too hard.
Please remember me in your prayers. I hope I can continue going to University and not take leave again.
I will let you all know how it goes. :-)

Monday, 17 June 2013

Heavy hands

Like when I had the first relapse in October 2013.. I am having a relapse where my symptoms are escalating quickly. Within an hour, I cant really lift my left hand up. It feels like a tonne..

I will not be able to post for a while. Bye.

:-*... :'(.

Its a beautiful day, but I am not well

Sunday, 16 June 2013

It is definitely a relapse

I feel so horrible..

everything below neck is numb, I can still feel and stuff, but its weird.

My fingers are so numb and very bad muscle spasm. I do not know how to get rid of it, I am still new to all this.. :(

Symptoms:

  • Its really hard to type, as I cannot feel the keys sometimes
  • I drop things constantly
  • Showering is a task!
  • No appetite
  • Forgetting words that are so common
  • Losing balance sometimes
  • Under left foot there a stabbing pain when walking
  • Under right foot it feels round, so a bit off balance now
  • Going to toilet quite often
  • FATIGUE

I am going to e-mail my MS Nurse and ask her if I should go an see her or go to GP.

The reason I think I have a relapse now is because of a few reasons:
  1. On 8th June, we had a party at out house, hosted by my parents for about 40 people. We had caterers and there was a lot of food left over, so we shoved the food in containers and put it in our fridge, so I guess the temperature varied in our fridge. For the next few days, the fridge temp was like 9-13 degree Celsius. All this time, my medication is inside the fridge. So maybe this week I was injecting myself with gone off Rebif.
  2. I had flu with 37.9 degree Celsius on Wednesday and I was ill since Tuesday. So maybe the increase in core temp caused the relapse.
  3. I have been stressed for a few days now, with my parents and brother. So I shouted a lot, Cried a lot, and been generally upset, so that caused the relapse.
  4. Or, its a relapse, face it. Pray to God. Keep Faith.

Saturday, 15 June 2013

Numb hands, body and mind

So basically two days ago..(13/06/2013), I woke up with a fever. I checked my temperature and it was 37.9 C or 100.3 F.

I was feeling so warm and nauseated.

So basically my body temperature shot up and it was the day after my injection. So injection's flu-like symptoms and actual flu symptoms..

I was able to manage it all with like 4 paracetamols and the flu went away.

But since yesterday, my hands started to become numb again, it hurts when I type. By the evening, my whole body is felling that "clothes-sliding-around" feeling again.. oh boy, I HATE IT..

I woke up today and it is at its worst.. everywhere it got that feeling. down to my toes.

also under my foot, it feels like there is something there. and it is poking me.

*SOB*..

Dear Lord, Please help me..


Wednesday, 12 June 2013

Driving lessons

I went for my first ever driving lesson on 10/06/2013.

It was fun, apart from the fact that I freaked out a couple of times and hit the brake suddently and got the car into a kerb.

Nothing majorly horrible happened. after three trials, I drove the car smoothly and parked it, according to the instructor "perfectly parked".. (tap on the shoulder).

There was a constant worry in my head that something bad is going to happen, like a seizure, or a numbness or something.

When I got home, I was so tired and my whole body felt like vibrating from the inside out. Maybe it was all the adraneline from driving for the first time.

Anyways, I cannot wait for the next lesson.

¥