Waiting for DMDs

Since I was diagnosed in October, I was told by my neuro that I need to start my DMDs ASAP..

I had to start seeing an MS Nurse, and I only got to see her in thr first week of December. She said it will take a few weeks.

I called her a day before Christmas and she said it can take at least 6 more weeks.

I feel like my steroid injections are wearing off. Coz my eyes are weird again amd my left side is numb and have slight pins amd needles

So, its been 10-11 weeks since I have been waiting and I am scared about having another relapse..

Please pray for me..

Symptoms I had so far.. 7 Jan 2013

Here's a List of Symptoms I had so far since March 2012

March 2012

• Right leg weakness (near paralysed)

June 2012 

• Migraine
• Seizure

August 2012

• Optic Neuritis (Lost 100% vision in Left eye for about 3 months within a week)

September 2012

• Altered skin sensation - cold when hot and hot when cold

October 2012

• Pins and needles
• Numbness 
• Constipation (for a week)
• Urinary retention
• Tongue numbness and taste disturbance (metallic and blood taste all the time)
• Numb teeth
• Numb lips
• Lack of appetite
• Under feet feels like round, so no balance
• Hard to walk
• Dry skin feeling in abdomen - clothes feels like they are sliding around
• No pain even when poked (I got burned with hot oil and didn't realise it)
• Tight back (it was the worst one) 
• Couldn't get up from bed - feeling sooo heavy!
• No hand eye coordination (I couldn't touch my nose with eyes closed or tell where I am touched without seeing)
• MS hug - up till heart line
• Behavioural changes - temper, happy, angry, stress, anxiety
• Memory Loss
• Lack of concentration

January 2013

• Double Vision
• Blurred Vision

Pain is back

Yesterday night my back was feeling a bit tight.. today it was gone.. but my altered sensation thing is back...

Whenever something cold touch the left side of my body, It is very painful like it is burning. So it was hard to shower as the shower curtain is so cold and it kept on touching me... :'(

My eyes are so bad... I cannot see clearly now, I would say my eye without Optic Neuritis is better than the one affected...:(.. It got definite double vision in my right eye

I am thinking of going to the Eye Casualty tomorrow and I called my MS nurse and she told me she want to see me on Wednesday (09/01/2013)

Eye co-ordination

My eyes have a lot of trouble focusing on anything and have double vision.. I have discovered that my eyes are not coordinating together...:(...

I feel like its going to be another relapse and I have no news about when I might be getting my Rebif..

Eye Update

My eyes are still bad.. My left eye just got near recovered from the first Optic Neuritis attack.. Now it could be back again.

My right eye was already short-sighted, now its even worse.. I have double vision and cannot see properly... It is so hard to focus on anything..

Eyes are troubling me again

Today I woke up with a heavy feeling in both my eyes.. this was how my first symptoms of optic neuritis was... I hope nothing will be wrong...:)

Happy new Year

I had a party last night... I got home at about 3 am.. it was a New Year party.. So I got to watch the London Fireworks from their house... It was A-M-A-Z-I-N-G...

London did goooood